PATIENT LED RESEARCH COLLABORATIVE - Key Persons
Job Titles:
- Assistant Professor of Epidemiology and Biostatistics at the University of California San Francisco
Alison Cohen is an assistant professor of epidemiology and biostatistics at the University of California San Francisco. She conducts community-driven, policy-relevant applied epidemiology research to document health inequities and identify and evaluate interventions that could improve health and reduce inequities. She has a PhD in epidemiology and a Masters of Public Health in epidemiology and biostatistics from UC Berkeley and a AB in community health and education studies from Brown University.
Anisha Sekar is a fintech entrepreneur with over 10 years of experience in product management, user experience, and strategy. She received her BA in computer science from Brown University with a focus on applied mathematics and statistics. Her analysis has been cited in Reuters, the Washington Post, Marketplace and more.
Job Titles:
- Member at Sainsbury Wellcome Centre
Dr. Akrami is a faculty member at Sainsbury Wellcome Centre, in University College London, where she runs a large neuroscience laboratory studying learning and memory in rodents, human, and computational models. She has more than 15 years of experience in scientific research and publications, project managements, and international collaborations.
Dr. Megan Fitzgerald holds a PhD in Neuroscience and has a background in human neuroanatomy, developmental neuroscience, and stem cell research. She became ill with COVID in March of 2020.
Job Titles:
- Scientist at the University of Vermont
Dr. Symeonides is a faculty scientist at the University of Vermont, USA. He is conducting wet lab research, primarily in the fields of virology and immunology, in the context of HIV-1 and Rotavirus. He is also engaged in educating and training early career (undergraduate and graduate level) scientists, both through lecturing as well as in the research lab.
Dr. Redfield received her Ph.D. and MS in Electrical Engineering from the University of Florida, and a BA in General Engineering from Johns Hopkins University.
Dr. Tess Falor, holds a PhD in Earth and Planetary Science from UC Berkeley. Motivated by her own complex health conditions, she changed her career to work on medical research and patient advocacy. She is cofounder of the community science self-experimentation project, RemissionBiome.org. She's also a patient representative on three additional ME/CFS and Long COVID research projects and is a member of the PLRC Patient-Generated Hypotheses Journal team.
Elisabeth Stelson is a licensed social worker and PhD Candidate in Social Epidemiology at the Harvard T.H. Chan School of Public Health. Beth's research focuses on the occupational health of social and health services workforces, vicarious trauma, and intimate partner violence.
Gina Assaf is an independent digital strategist, researcher, and designer for the humanitarian and global aid sector, and the co-founder and managing director of a digital design & development consulting organization. She has worked for organizations such as the United Nations, IRC, World Bank, USAID contractors, Intuit, and GitHub.
Giorgia is an information designer. She is a Partner at Pentagram in New York. After receiving her master's degree in Architecture, she earned her PhD in Design at Politecnico di Milano. In 2011, she co-founded Accurat, an internationally acclaimed data-driven design firm with offices in Milan and New York.
Hannah Wei has a background in cognitive science and computer science. Her work focuses on the intersection of global communities, frontier technology and user-centered design. She has led product design and research initiatives on the ground in Indonesia, Ghana, and Taiwan, and has worked with teams at Facebook, MIT Media Labs, Harvard Innovation Labs.
JD Davids is a health justice and communications strategist for networks of disabled and chronically ill people. A queer and trans person living with myalgic encephalomyelitis (ME/CFS), Long COVID and other complex chronic conditions, he is co-founder and co-director of Strategies for High Impact / Long COVID Justice. He also writes and hosts conversations for The Cranky Queer Guide to Chronic Illness. He's served as an advisor with many groups, including the U.S. Caucus of People Living with HIV, NIH, CDC, and health departments, and was managing editor and director of strategic communications for TheBody.com.
Julia Moore Vogel is a Long COVID patient-researcher at Scripps Research, where she is leading a study that examines whether wrist-worn wearables can help people with energy-limiting conditions implement pacing. She also oversees inclusive health research efforts through the All of Us Research Program and other initiatives. Julia previously managed genomics initiatives at the New York Genome Center and The Rockefeller University. She has a PhD in Computational Biology and Medicine and an MBA both from Cornell.
Letícia Soares is a Brazilian scientist and disability activist with a Masters in Ecology and a PhD in Biology. Her scientific background is in ecology, evolution and epidemiology of infectious diseases and she has developed and published research in human and wildlife diseases. She also has extensive training and experience in teaching Biological Sciences.
Lisa McCorkell has a Masters in Public Policy from UC Berkeley and a BA in Political Science from UCLA. Her background is in public policy, public health, advocacy, writing, and research.
Michael has a background in science and technology policy. He has held senior positions at the National Science Foundation and has also worked for the Congressional Budget Office.
Rachel is a Cornell University graduate with a degree in Operations Research Engineering and 6 years of experience working in sales strategy. She has skills in building data pipelines for the purposes of automation and reporting.
Jo Hsu (they/them) is an assistant professor at the University of Texas at Austin, where they study storytelling as political strategy. Right now, they're working on several projects that examine how discriminatory narratives affect scientific research and medical treatment-and how prejudicial arguments appropriate scientific terms to legitimize social inequity. www.vjohsu.com.