Companies similar to RARE PATIENT VOICE
Sign up to Download

1-30 of 5,715,284 results

  • rarepatientvoice.global
  • 33
  • 1
  • 34
Rare Patient Voice, LLC provides patients and caregivers with rare diseases an opportunity to voice their opinions through surveys and interviews to improve medical products and services... For patients and caregivers - we provide the opportunity to..
Relevance: 42.462673
  • www.thepatientvoice.com
Rare Patient Voice, LLC provides patients and caregivers an opportunity to voice their opinions through surveys and interviews to improve medical products and services. RPV has over 100,000 patients across 496 different conditions... We've been..
Relevance: 32.220074
  • rarelifesolutions.com
  • 1
In the small, hard-to-reach communities that define rare disease groups, the stories and the connections they forge require a different approach. We specialize in three areas critical to the successful development and commercialization of treatments..
Relevance: 24.910812
  • dravet.eu
  • 1
  • 3
Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Dravet Syndrome European Federation (DSEF) is a non-profit organisation, a federation of..
Relevance: 23.065979
  • advicenne.com
  • 5
  • 7
  • 17
Advicenne is a specialty pharmaceutical company dedicated to improving the lives of patients who suffer from rare renal diseases... At Advicenne we are dedicated to improving patients' daily health and life. Our employees in France and the United..
Relevance: 22.353271
  • www.findacurepanel.com
  • 1
Find A Cure Panel (FACP) specializes in patient and caregiver research for general ailments, serious and rare diseases, injuries, disorders and conditions. FACP is a platform for patients and their caregivers to share their opinions and experiences..
Relevance: 22.186249
  • www.koba-consulting.com
  • 1
  • 2
We know that successful launch of rare disease treatments excel in four areas: Great commitment to the rare disease community, whose support is key. Use of innovative methods to identify patients who need treatment. Take a highly tactical approach to..
Relevance: 21.613293
  • voice-care.com
  • 1
  • 1
Voice-Care is a ground-breaking solution developed specifically for the healthcare sector, designed to progressively transform patient safety and care... Voice-Care provides caregivers with the steps required to care for their patients, giving..
Relevance: 21.512882
  • marinuspharma.com
  • 7
  • 1
  • 30
Marinus Pharmaceuticals is a clinical stage biopharmaceutical company dedicated to the development of ganaxolone, offering a new mechanism of action with demonstrated safety and convenient dosing for patients affected by epilepsy and CNS disorders.....
Relevance: 21.40078
  • theresearchloopsite.wordpress.com
  • 1
  • 1
The Research Loop is designed to close the gap that happens after research is published and before new research starts, giving patients and caregivers a chance to take part in all aspects of the research process. Most research is done without..
Relevance: 21.184732
  • www.rabasia.org
  • 3
The first ASEAN+ Rare Disease Network has been established, bringing together patient support groups from across Southeast Asia (Singapore, Malaysia, Indonesia, the Philippines and Vietnam) and Hong Kong. The mission of this Network is to better..
Relevance: 21.070192
  • leiomyosarcoma.info
  • 1
  • 1
This website is dedicated to Gilles Frydman and to all the contributors of the original Leiomyosarcoma.info website (listed here ) who provided a valuable compass to guide LMS patients/caregivers/families... This Leiomyosarcoma research website is..
Relevance: 20.983837
  • www.yourcatalystpathways.com
  • 2
Catalyst Pharmaceuticals is committed to the rare disease community, and the Catalyst Pathways program supports patients and caregivers from both the LEMS and DMD communities... Catalyst Pharmaceuticals understands that people living with rare..
Relevance: 20.178211
  • www.myvitalconnection.org
We created Whole Person Health | Vital Connections to bring you together with equally passionate people looking for Inspiration, Motivation, and Support along their health journey... Educating and Supporting Patients, Caregivers and their Families |..
Relevance: 20.130426
  • caregiversr.us
  • 2
  • 1
While caregivers often start out as friends or family of patients (or patients themselves), once you've developed skills as a cannabis producer, you have the opportunity to maximize the potential of your capabilities by connecting with new patients...
Relevance: 20.113598
  • kansascaregiverssupportnetwork.com
  • 1
  • 2
The Kansas Caregivers Support Network provides meaningful representation and a voice to those providing care for children not born to them... The Kansas Caregivers Support Network believes collaboration with all partners across the state is..
Relevance: 19.962006
  • www.glycomine.com
  • 1
  • 1
  • 17
Glycomine is committed to developing therapeutics for serious rare diseases, the vast majority of which do not have any disease-modifying treatment options available. There are approximately 7,000 rare disorders worldwide. Each day more are being..
Relevance: 19.888958
  • clarityco.com
ClarityCo Strategic Group was established in 2017 and has conducted thousands of qualitative and quantitative engagements with HCPs, Patients, Caregivers, Payers and KOLs. We proudly maintain strong partnerships across the pharmaceutical, biotech,..
Relevance: 19.882524
  • www.pcdcyprus.com
  • 5
  • 1
The Cyprus Alliance for Rare Disorders (CARD) is a non-profit organization founded on June 2, 2010. Its purpose is to provide a dynamic and united voice to the approximately 60,000 patients with rare diseases currently diagnosed in Cyprus... The..
Relevance: 19.8796
  • www.medterasolutions.com
  • 1
  • 1
At MedTera, our focus is on developing the next generation healthcare ecosystem that provide Patients and Caregivers with the tools, resources, and support they need to manage their chronic, terminal, or rare condition. Through our integrated network..
Relevance: 19.658113
  • www.adld.center
  • 7
  • 6
The ADLD Center is focused on raising awareness about Autosomal Dominant Leukodystrophy (ADLD) and developing a network of clinicians, researchers, patients and their caregivers/advocates in order to raise funds as we move forward towards finding a..
Relevance: 19.653652
  • allabilitiestherapy.com
  • 2
  • 2
  • 4
We are a practice dedicated to pediatric care. Our therapists are specially trained to treat both common and rare pediatric conditions. Clinic owner, Samantha Cohen, is a board-certified pediatric specialist and is passionate about teaching and..
Relevance: 19.554022
  • rarediseasesday.wustl.edu
  • 1
  • 12
According to the National Institutes of Health (NIH), a disease is rare if it affects less than 200,000 people in the United States. Over 25 million Americans live with a rare disease-and nearly half of these patients are children. For the over 7,000..
Relevance: 19.534006
  • eurreb.eu
  • 1
  • 15
EuRREB is dedicated to creating a comprehensive natural history registry for research of rare endocrine and bone conditions. The availability of these shared datasets for rare conditions expands the scope of discovery for researchers and for..
Relevance: 19.421932
  • www.sampleczar.com
  • 2
  • 1
We have a specialty in oncology and have recruited for over 100 projects for patients with stage 4 cancer... We manage all aspects of recruitment from identifying the participants, encouraging them to participate, getting their preliminary..
Relevance: 19.341259
  • www.sampleczar.com
  • 3
  • 1
Translation Czar offers reliable, high quality translation in all languages. We specialize in translation of market research surveys in all sectors including consumer, b2b, technology and medical... Find A Cure Panel (FACP) specializes in patient..
Relevance: 19.286282
  • csfshayna.org
  • 1
  • 1
  • 1
The purpose of CS Foundation is to educate the public about Chondrosarcoma, to support and advocate for patients and families that are suffering from this disease, and to improve the treatment and care for these patients. Most importantly, CS..
Relevance: 19.017193
  • ehlersdanlosnews.com
  • 2
  • 2
  • 25
Ehlers-Danlos News is a digital platform intended to provide the Ehlers-Danlos syndrome (EDS) community with the most recent news and information on EDS, as well as first-hand community perspectives from our patient and caregiver columnists... The..
Relevance: 18.93243
  • elizgrovesurgery.com
  • 2
  • 1
For over 60 years, our clinic has been providing comprehensive health care to patients in the Northern Suburbs. Our patients come back year after year for the personal touch ¦ the rare opportunity to have a doctor who is YOUR doctor, someone who will..
Relevance: 18.927225
  • www.inspire.com
  • 3
  • 1
  • 14
Inspire is the vital community of more than two million patients and caregivers -a carefully designed environment where everyone feels comfortable and safe to open up about personal health experiences and share sensitive health information. These..
Relevance: 18.848549